Course Description
Advances in human genomics have made their way from the lab through medical practice, public health programs, big health data initiatives, consumer market products, and all forms of media into the lives of everyday people. Debates over the implications for society and public health policy have grown rapidly beyond the confines of academic expertise (e.g., researchers, clinicians, ethicists) to a wide range of communities and stakeholders. As post-modern skepticism gives way to metamodern possibilities, this course takes a social science perspective to human genomics by exploring the ways social, cultural, and community research is used to frame science and biotechnology and thus contribute to the creation of meaning. The range of topics include: the evolving role of science in society; metamodernism and genomics; genetic journeys - screening, testing, follow-up, utility; medicalization and stigma; quality of life and disability; the media and their mediums in science discourse; movements of precision – race, ancestry, community; group harms, benefits & rights; community-engaged, -based, -led research. Readings for each topic will cover both the concept and accompanying research studies that are used to examine it.